Comments on: Life With Food Allergies: How FPIES Made Me A Better Mom

By: Maxine Allison

Maxine Allison — Sat, 23 May 2015 02:48:10 +0000

Hi my niece is Amber she shared your message My heart goes out to her with her son and you for I am not a child but until a few years ago I did not have any idea why I vomited even driving I carried a bag until my doctor said he was burned out on me a new doctor coming on I could see her. After she came on board in two weeks she had me getting a pacemaker had cat scan on my shoulders, bones were dead so between surgeries she said try glutton free oh my life changed in 3 days I was a knew person. But my heart hurts so much knowing the pain these kids go through I can not imagine how hard it is, especially when they are so young and cannot say the reason I cry or I am all over the bed you can’t see my stomach hurts so bad and all the other symptoms Oh y goodness pain and so young. Amber has gone through it all her husband was thinking she was nuts until he tried a new disposable diaper he felt so bad when Aiden broke out, but it was an eye opener. Their older child had TA and babysitter knew Aiden’s problems said she didn’t give him anything fed her daughter cheese balls in the high chair Aiden was crawling sick that night now dad said Amber you can not work maybe never. When I think of my pain and know from my experience their pain and they know nothing else their whole lives. God dose not promise no problems but dose promise He will be their always and carry you but life dose not promise life easy no pain no troubles to me Amber an Shane have grown and sharing giving back amazing parents that is what I believe problems even the worse you can be grateful for what you learn and give back. It dose not stop the pain and when your child is in pain its so very hard we do not want them to suffer so you study look for answers everywhere and you learn from trial and area. My son asked me if he was dying I did not answer but later I said good by (its ok) and he went to my friend told her tell my mom (its ok) same words I said I know God is in haven and my son. So I know He is their to get us through. Thank you for being their for others. God Bless.

By: Carrie

Carrie — Fri, 22 May 2015 14:25:01 +0000

Thank you! My hope is that il the information reaches the right people and we can raise awareness for our kiddos.

By: Carrie

Carrie — Fri, 22 May 2015 14:23:46 +0000

When you’re ready to put it into words, please let me know. I’d love to share. Chronic illness is a nightmare, even more so when it’s your baby.

By: Carrie

Carrie — Fri, 22 May 2015 14:22:09 +0000

Hugs to you, mama.

By: Beth Beach

Beth Beach — Fri, 22 May 2015 13:30:11 +0000

This brought tears to my eyes. Thank you for putting to words how I have felt and how I feel!

By: Heather Reed

Heather Reed — Fri, 22 May 2015 05:02:33 +0000

Holy. Shit. I’ve been following you forever and had no idea you were dealing with FPIES too. You’re inspiring me to write about our journey. Maybe it will be therapeutic … My marriage didn’t survive it, but my son did! Hugs, mama. You rock 😉

By: Autumn

Autumn — Fri, 22 May 2015 01:55:18 +0000

Amazing Momma! My son has severe food allergies. I can understand most of what you have taken the time to write. I too, am a helicopter mom! Much love to you and all you do for your beautiful child! Thank you for sharing!